Raptor Computing Systems Community Forums (BETA)

Water Cooler => General OpenPOWER Discussion => Topic started by: pocock on July 22, 2020, 01:06:24 pm

Title: RCS products for confidential human subject research data
Post by: pocock on July 22, 2020, 01:06:24 pm
Many academic institutions around the world have special requirements for the storage of confidential human subject research data.

For example, a private company like Facebook can profile their users and there is little control on that.  But when a team in a university conducts a study on the same human subjects, they have to go to their Institutional Review Board (IRB) (https://duckduckgo.com/?q=irb+secure+data+storage&t=ffab&ia=web) for approval.

Each time they start a new study, they have to approach the IRB and submit a plan.  The IRB can ask about their data storage and processing strategy.

This appears to be a use case where legislation introduced decades before modern spyware forces them to look for best practice (https://en.wikipedia.org/wiki/Institutional_review_board#United_States_mandate_for_IRBs).  With each new generation of technologies like Intel ME, the OpenPOWER and similar platforms become more compelling for this type of user.

Has anybody already tried to pitch these solutions in that environment?